Sunday, December 12, 2010

Thanksgiving

This year it seems that we have so much to be thankful for. We have been blessed. Not a day goes by that this family doesn't stop at least once and think silently about what all we have been given. So, here is to family, friends and wonderful food. That is what Thanksgiving is all about.







A Month of Good Health

Thank goodness there isn't much new to report on this end. Dad's last appointment produced nothing but good results. His rejection medications continue to be lowered and his labs continue to look great. After 7 long and somewhat excruciating months for Dad, his strength seems to be making a comeback. He has been working in the yard, playing soccer with the grandkids and feeling human again. For the first time in over 25 years, Dad is beginning to discover what it feels like to have a working heart. His taste buds are also still in working order. This is Mike examining the Thanksgiving turkey before the big meal.


Falling Behind

So I have been a bit delinquent in my postings lately. There is lots to talk about, I have just had a heck of a time finding a free moment to post some updates. Hopefully after tonight, everyone will be all caught up! Between Thanksgiving and appointments, there is lots to report.

Tuesday, November 16, 2010

Over the hills and through the woods...

...to Mimi and Papa's camper we go.

Last weekend Danny and I got a much needed weekend away while the kids went camping with Mimi and Papa. Taylor also joined in on the fun. They went to Yogi Bear's Jellystone Park outside of Houston. The three kiddos had a blast. They played putt-putt, cruised around in the golf cart, sat by the campfire and did karaoke. What a weekend. What is even better is that Dad is feeling up to trips like these.


The weekend was a success all around. Victor was a bit upset (as you can see in the picture) that he was having to leave the camper. They are already planning their next trip.

Saturday, October 30, 2010

Business as Usual

I know my posts haven't been as frequent these days. That is good news! We like it when days and weeks go by with nothing major to report on. However, in Dad's world, every day that goes by is a small victory. It is one more day under his belt in this long, but well worth it, road to recovery.

Dad is doing really well these days. During his last appointment, all his blood work looked good. They didn't change any medication and sent Dad home to keep doing what he is doing. There are still slow days. A few hard days. Days filled with naps and taking it easy. But there are also lots of days with grandkids, sunsets and good meals. Days with family all around, happy moments and plans for the future. It is days likes these that make everything all worth it.

Thursday, October 21, 2010

Happy Birthday

This has been one heck of a year for Dad. A heart transplant, a 40th wedding anniversary and now a 6oth birthday! We continue to be blessed each day, in so many ways. Dad, if there is ever a year to celebrate, this is it. Enjoy your day.

HAPPY BIRTHDAY!

Sunday, October 10, 2010

40th Anniversary

Today, 10-10-10, Michael and I celebrate our 40th wedding anniversary. In October, 1970 we had met 5 months and 1 day earlier, just a few weeks shy of my high school graduation. My granny lived near Hempstead, Texas and for over a year had been telling me that I needed to meet John Michael. He was her paperboy. I guess you could say that the Houston Chronicle played a big part in bringing Michael and I together. So by chance, if there is such a thing, I was visiting my grandparents that May weekend when I saw a red Mustang entering their subdivision. My granny is saying, “You better get your hair fixed, I just know he is going to stop by.” Seriously? Why would he do that? Anyway, fixing my hair was not an option. I had just washed it and rolled it in about ten orange juice cans and it would be another 3 to 4 hours before it would be dry. So as our discussion continues I hear a car door close.

We sat at my granny’s kitchen table for over an hour. I can’t remember everything we talked about, but I remember him asking if I would like to go with him to finish his route. In what has now become the first of a long string of family “events” and just the beginning of the Nall Saga, we end up in a cow pasture when the Mustang’s brakes failed. As they say, the rest is history. To be continued…

One of our wedding gifts was a poem that my father wrote for us. The framed hand-penned poem has moved from place to place with us and hung on many a different wall. It has served as a prayer (of sorts) for me and now I would love to share it with you. My dad could have never dreamed that this was possible. Enjoy.

Our best wishes, Michele and Michael
May the notes that your lives sing
Forever be of kindness, forgiving and those of TRUTH above everything.
Notes that ring clear against bigots with sounds of meaning, better than mine.
Patience displayed, contempt not errors
Not envy those that great blessing find.

May God guide you beyond reproach,
Hear not sour notes others may sing.
Employ faith in your judgments
But TRUTH sings loud in everything ---
A song, not of Life’s imagined journeys
As idealized in old gray dusty books,
But one of ideal cooperation of your graces, fearing not the comments of doubting looks.

May God enrich your tolerances daily
To the tune only brave angels can sing.
Have no pious hates or holy wrath
But TRUTH above all with everything.
Put notes to service, sing duty with joy,
Deny not others voice to disagree,
From bitterness do not sin, dream, be bold,
Then Life’s song you’ve sung. Heaven’s for thee.

A poem I wrote, just for you two on this your wedding day – 10-10-70.
All our love forever, Dad and Mom Miller

Wednesday, September 29, 2010

Breathe, Just Breathe

I'm not sure I have ever talked about the episode that began the path to a new heart. It is scary. Unbelievable. Proof that my Dad's life is one big miracle.

A little more than a year ago we were preparing for a possible direct hit from hurricane Ike. My entire family was staying here in Bryan with Danny and me, while Steve and Dad stayed behind to watch over their houses. Something deep inside me knew that trouble was around the corner. I remember begging Dad to come here with the rest of the family. But he stayed. I think back now and wonder if that night is when God began to reveal his plan to us.

It was a Friday night and we were taking the kids to go bowling. We were cooped up in the house during the worst of the storm and were all ready to get out and get some fresh air. I was sitting there watching Victor bowl when Aunt Marlene walked in the door. I knew instantly something had happened. She sat me down and explained that my Dad had been taken to the hospital. Steve heroically braved fallen live wires, flooding, and power outages to get him there.

That night my Dad was on death's door. In fact, one foot was half way in. He went into cardiac arrest and managed to survive a grueling 30 minute trip to the hospital. They ended up shocking his heart, while he was conscience, to bring his heart into a safe rhythm. The doctors tell us that only a few more moments and he wouldn't have survived. My heart stops every time I think of that night.

Flash forward to today. A year later and this family has been around the world and back (or so it feels). Paperwork, tests, appointments, hospitals, wires, monitors, cameras, surgery, medications, and on and on, consumed this family for five months. But something else also consumed us; hope, love, compassion, gratitude, laughter, and perspective.

And now life is moving on. Dad still has rough days. He is still on more medication in one day than most people take in a month or year. He has won the battle and is well on his way to winning the war. We are looking forward to camping, holidays, a vacation. Life; we are looking forward to life. I can hear my Dad's sheer happiness in his voice when you talk about his grandkids. For the first time he can see himself in their future. I can see that the weight of the world has been lifted off my Mom's back.

So, now what do we do? Breathe, just breathe. Cherish every moment. Make memories. Never forget to say I love you. And always pray for our donor family. We are connected in a divine way. One day we will show them how their choice changed this entire family's world.

Thursday, September 16, 2010

September Update

Yesterday, Michael had labs, echo, and biopsy. Just got the word… they are discontinuing another of his meds and there will be NO MORE BIOPSY’S unless they suspect something is going wrong. AWESOME! He will go for a clinic visit once a month until they feel totally comfortable about his progress. Unbelievable at just how well he is doing.

Thank you all for your prayers and your support throughout all these months. You all are wonderful and I am so fortunate to have you in my life.

Love to all,
Michele

Tuesday, August 31, 2010

What this Heart Means to Janice

First and most important it means my big brother will be around longer!
And what little girl would not want their big brother around?

It means Michael and I can share secrets that only the two of us can remember.
Most good and happy times that brings a smile.

It means knowing that the other one will be there if needed.
We can talk, or just be together sharing the time with no words spoken.

It means a lot more cooking and sharing laughs as a family.
Good food, good times and loving family what more do you need! With no PAPER PLATES!

It means being together watching all our grandchildren grow, learn and become adults.
Michael’s four grandkids and my one are shared by all, and know what love means.

It means Michael and I can laugh together at our grown children when being a parent tries their patience!
If no one gets panted green all is good with the world!!!

It means more shopping for me and more fussing for Michael.
I know he really does like getting gifts!!!!

It means closing the book on what he can’t do because of his heart and opening the new one which reads, “Look out World here he Comes”!!

It means we all get to share in that joy.
Thanks to a person unknown to us, but who will always be such a big part of our lives. Thank you.

Sunday, August 29, 2010

More Good News

On Dad's last doctor visit they lowered his anti-rejection medication to a very low dose. He was doing so well that they were able to cut back dramatically on this drug. Since this particular medication is responsible for keeping his heart and body on good terms, the doctors wanted to make sure that this new does would not compromise Dad's health. So, last week they sent him to the lab to get some blood work done. The good news is is that his prograff level is just perfect and he will be able to stay at this very low dose. This is truly amazing. Some transplant recipients never get to this low of dose of anti-rejection medication. Dad is truly blessed!

Dad is also up and moving around a lot more than he had been in the last few months. He seems to be feeling tons better. Yesterday Mimi and Papa brought Taylor and made a special visit to come and see Abby and Victor. We all had a nice dinner and then they took all three kids for a trip to Toys R Us. A great time was had by all!

What this Heart Means to Leslie

This year I created a heart. Well, not me really, but I am getting to be an amazing part of it. At only five weeks, my son was the size of a sesame seed but already had four working chambers that were beating and pumping blood to his miraculous new life. It's amazing what our mighty God can do and how, no matter what you believe, the life of a child can put everything into perspective.

Seven years ago I saw this occur. My Uncle Mikey became a Papa for the first time and he changed. This new life and the two that made him a grandfather again and again caused Uncle Mikey to "wear his heart on his sleeve." I had never seen a grandfather love and dote on three kids so much. He had fallen in love with these new lives "heart and soul".

What this heart means to me is simple... the continued ability for a papa to experience life with his family, both new and old.

Thursday, August 26, 2010

What this Heart Means to Melissa

heart (härt)
n.
1. Anatomy
a. The chambered muscular organ in vertebrates that pumps blood received from the veins into the arteries, thereby maintaining the flow of blood through the entire circulatory system.
b. A similarly functioning structure in invertebrates.
2. The area that is the approximate location of the heart in the body; the breast.
3.
a. The vital center and source of one's being, emotions, and sensibilities.
b. The repository of one's deepest and sincerest feelings and beliefs: an appeal from the heart; a subject dear to her heart.
c. The seat of the intellect or imagination: the worst atrocities the human heart could devise.
4.
a. Emotional constitution, basic disposition, or character: a man after my own heart.
b. One's prevailing mood or current inclination: We were light of heart.
5.
a. Capacity for sympathy or generosity; compassion: a leader who seems to have no heart.
b. Love; affection: The child won my heart.
6.
a. Courage; resolution; fortitude: The soldiers lost heart and retreated.
b. The firmness of will or the callousness required to carry out an unpleasant task or responsibility: hadn't the heart to send them away without food.
7. A person esteemed or admired as lovable, loyal, or courageous: a dear heart.
8.
a. The central or innermost physical part of a place or region: the heart of the financial district. See Synonyms at center.
b. The core of a plant, fruit, or vegetable: hearts of palm.
9. The most important or essential part: get to the heart of the matter.
tr.v. heart·ed, heart·ing, hearts Archaic
To encourage; hearten.
Idioms:
at heart
In one's deepest feelings; fundamentally.
by heart
Learned by rote; memorized word for word.
do (one's) heart good
To lift one's spirits; make one happy.
from the bottom/depths of (one's) heart
With the deepest appreciation; most sincerely.
have (one's) heart in (one's) mouth
To be extremely frightened or anxious.
have (one's) heart in the right place
To be well-intentioned.
heart and soul
Completely; entirely.
in (one's) heart of hearts
In the seat of one's truest feelings.
lose (one's) heart to
To fall in love with.
near/close to (one's) heart
Loved by or important to one.
steal (someone's) heart
To win one's affection or love.
take to heart
To take seriously and be affected or troubled by: Don't take my criticism to heart.
to (one's) heart's content
To one's entire satisfaction, without limitation.
wear (one's) heart on (one's) sleeve
To show one's feelings clearly and openly by one's behavior.
with all (one's) heart
1. With great willingness or pleasure.
2. With the deepest feeling or devotion.

I think that just about sums it up. The heart is physical, it is emotional, it is action, it is peace, it is life, it is everything.

Tuesday, August 24, 2010

What this Heart Means to Amanda

A heart has never meant more to me than it has in the last twelve months.

8 months ago a heart became something that could betray me suddenly. A heart became something that could stop without notice in one body and thus break hearts in countless others. A heart was a cruel organism that could betray its owner, cause suffering and continue breaking long after it seemed possible. A heart could ache and it seemed a heart could not heal.

5 months ago a heart became something that could be exchanged. A heart may have stopped working in one body, but the heart could be given to another to create life. The heart conflicted me. The heart could cause rejoicing in one life and suffering in another. It seemed so bittersweet, the heart.

4 months ago a heart became something that could be created. A heart could be grown from a single cell. A heart became a cause to rejoice without the pain of loss. A heart became not just a sign of suffering or a sign of conflict but instead of pure joy. Finally a heart became peaceful.

Today a heart means complexity. Sometimes it means joy, or guilt, or pain, or happiness. Sometimes the heart means calm, restfulness and sometimes it means chaos. A heart means life. Not solely in the essence of being alive but instead the idea that life encompasses all emotions, ones that are categorically "good" and "bad" and all of the grey areas in between.

All of these things combined mean love. A heart is neither pained or prosperous without love.

Monday, August 23, 2010

What this Heart Means to Marlene

What does the precious heart one special family gave to our John Michael mean to me? From a broader and more general definition It means a blessed and gracious ‘continuation’ of love yet to be given, yet to be shown, yet to be received and yet to be known by family, friends, acquaintances and even strangers. From a personal perspective it means that the person I have seen grow from a young man of only 18, to my sister’s husband, to a brother-in-law whose home I would work on most every weekend (Evans St.?), to a father, to a pawpaw …can now be here with us longer and ‘continue’ his commitment to marriage, loyalty to his wife, dedication to his children, grandchildren and son-in-laws. John Michael has been someone that throughout my life has modeled stability within his family and who has been a male figure of a family man in my children’s lives. We and others have always been able to count on him.

Kelly and Lindsey shared how the circumstances of John Michael’s heart condition actually brought with it unique ‘opportunities’ to draw nearer in relationship and I agree that it has done that for all of us. They also mentioned that humor is an important component of the ongoing process and I believe everyone has lived up to that for sure. Having said that, John Michael’s new heart does not seem to have changed the sometimes sarcastic, often cranky, completely pampered (spoiled by his wife) ol’ geezer that we all know and love … and surprisingly enough, I am actually grateful for that. For all his gruffness …he’s still the same big old ‘bald’ teddy bear and we love him in spite of himself :-} …and that’s the truth.

Wednesday, August 18, 2010

Good News

Dad had his regular blood work, biopsy and visit to the doctor today. I am pleased to report that all reports are good! His biopsy came back at a 1 and they are even lower the dose on a few of his medications. This is very good news! Dad is making huge progress and it is so nice to see him doing so well. Keep up the good work Dad!

Tuesday, August 17, 2010

What this Heart Means to Kelly

When I think of all the major on-goings in my life as a kid, they all seem to revolve around Dad being sick. Not sure if it’s good or bad but my most fondest memories and funniest moments have been during Dad’s “episodes”. To this day we still laugh about Lindsey riding in the plane on the toilet seat to Iowa, and Dad giving Steve a hard time about how due to his lack of driving skills he tried getting rid of him during Hurricane Ike. What good are life changing events if you can’t find anything to laugh about afterwards? The one important thing I learned growing up from Dad was to joke about everything, laughing will always make you feel better. There is only one person in the world that you would ever think of when you see a bean bag, a roll of duck tape or a crappy old beat up not running car that would make you laugh uncontrollably…that’s my Dad. There’s always something to laugh about when he’s around. By reading my sister’s What This Heart Means…you can see she was the more serious one of the family, me not so much. Dad and I have always had a sick sense of humor when it comes to showing affection to each other and others around us… make fun of people or joke with them this shows them how much you love them. So note to everyone reading this, if we’ve joked about you then you know you are loved!

What this heart has meant to me is that I actually got to know my Dad, all jokes aside. Growing up I have a lot of really great memories, but none like the one I will have during the 3 months he was in the hospital waiting for his new heart. We’ve always joked, but never really sat and discussed life, kids, work, etc. Our daily breakfast, occasional lunch and weekend visits with the family were something I will always cherish. I’ll never forget the look on the nurses face the first time he went on a walk with R2D2, he pretended like she unplugged the machine and he was being electrocuted (of course I was standing there getting it all on tape)…we both laughed – she didn’t! From then on everyone in the hospital knew never to take either one of us seriously. I honestly thought many a times that if a new heart didn’t come or something happened, I felt like I knew and understood Dad better than I ever have and I’d be ok with whatever came our way. Now the added bonus is that he got a new heart, and now my kids are going to get plenty of jokes, made fun of and lots of laughs. They can learn how to be jokesters from the Master.

Sunday, August 15, 2010

What this Heart Means to Lindsey

For as long as I can remember, my Dad and his heart have been a big part of my life. When I was little I didn’t really understand the seriousness of my Father’s disease. My parents did a good job of shielding us from it and I never would have guessed that my dad would face years of battling heart disease. However, over time I became more aware of my dad’s condition. Once I moved out of the house, late night calls sent me into an immediate panic. I would wait to hear the tone in my mother’s voice before deciding how to react. Plans were made with the reality that we may never see them through.

Don’t get me wrong. My life with Mom, Dad and Kelly was wonderful in so many other ways. My parents were adventurous, spontaneous and never ran short on hugs and kisses. I will never regret for one minute the life I have with my family. My dad’s illness has allowed me a unique perspective on life that I was blessed to learn at a very young age. My glass was never half empty.

So, what does my Dad’s heart meant to me? Everything. It means we get to make plans for the future. It means I get to imagine my Dad watching his grandchildren grow. It means I get to see the most important woman in my life grow old with her soul mate. It means I have a chance to have my daddy around to give me a hard time, make fun of my hair and tell everyone where my kid’s good looks come from. This beautiful gift from God will never go unappreciated. I will always be grateful. Yes, this heart means so many things to so many people. For me, it means I get my Dad back.

Blog Project

I can't believe it has only been four months since the transplant. It seems like a lifetime ago that we were given the news that Dad's heart had reached the end of its useful like. I remember that day so clearly. It was the beginning of an experience that forever changed my family.

While Dad was in the hospital awaiting his heart, the jokes were non-stop. Laughter filled his room. It was not the scene of a man who's days were numbered. No. Life surrounded him.

We all stayed strong while on this adventure. We rarely got upset in front of Dad. We saved our tears for private moments when we could release the fear, frustration and exhaustion without an audience. Over time I just assumed that the emotions would get easier to handle. I knew we would all be full of so many emotions after Dad got his heart, but I thought time would calm those down. Ironically, the opposite has happened. It doesn't take much to send the entire room into tears. We know we have been given a gift. We know we are blessed. That is such a strong emotion that you can not help but let it out.

This brings me to my new blog project. We each have our stories. We each have gained something different from this experience. I thought everyone would enjoy getting a glimpse of what this heart means to us.

Two Cute Stories

I have to tell two cute stories about Victor and Papa. I need to give a little background first. Victor had his 4 year vaccines a few months ago. Dad can't be around anyone for a few weeks after vaccines because of his weakened immune system. Dad came to visit about two weeks after his shots and we were still being cautious.

When Dad walked in the door, Victor went to give him a kiss and a hug. Victor went to kiss him on the lips and Dad turned his head and asked for a kiss of the cheek. Vic asked why and we explained about the shot and how we have to keep Papa safe.

Later that night we all went out to dinner. After dinner the kids all asked for a penny to throw in the fountain to make a wish. Mimi digs some change out of her purse and asks Victor what his wish will be. He thinks really hard and then responds, "I will wish that I could give Papa a kiss on the lips." Needless to say, the entire table broke into tears. So sweet.

It gets better. A few minutes later Victor asks Papa if he will take him to the bathroom to wash his hands. Dad tells Victor that it might be better if someone else takes him. He explained to Vic that he is still moving kind of slow and has to make stops along the way to regain his balance (all the meds are still taking their toll on him). Victor looks up and Dad and says "Don't worry Papa. I will hold you hand." He then proceeds to walk with Dad to the bathroom at a snails pace. He took very good care of him.

All of the grandkids have really been great through this. They are all so concerned about Dad and have such compassion. I am so glad they all have had this experience to learn and grow from. It will serve them well in the future. I know it has for me.

Busy Times

I have to apologize for not posting more often. Now that Dad is getting better, life is returning to normal and we have all been busy! First, an update on Dad. He has been in one time since my last post for blood tests and a visit with the doctor. Everything looked great! They assured Dad that four months post-transplant is nothing and that he should not discouraged when he isn't feeling 100%. They are amazed at how well his heart is working. The doctor told him that it is working far better than his first one ever did. It really is amazing how well he is doing. We cherish every day he improves.

Mike is finally getting up and around. A few weekend ago he went with Kelly, Steve and Taylor for their first trip in the camper. I think Taylor was thrilled to have his Papa with him. Last week Dad spent a few days with his grandsons and took them to the junkyard. He is staying busy and the kids are loving it! A few more months and we may not be able to keep up with him.

Thursday, July 22, 2010

Progress

I feel somewhat like a new mom posting statistics about her baby. Except this is about my Dad and his new heart. He had his regular checkup yesterday and the news is all good.

Biopsy = 1.
Labs = negative for infection.
MRI = no abnormalities.
Pressures = excellent.
Hard of hearing = nothing they can do about that (but Mom did ask).

He also was informed yesterday that he could begin to do some traveling later this year as long as he doesn't fly. I know he is looking forward to getting out there and enjoying life.

On another note, Mike saved some one's life today. He was at Luby's when a woman began choking. He ended up doing the Heimlich on her and dislodged the food. There really is never a dull moment in this family.

I have to continue to thank everyone for their continued support and prayers. Dad could not have done this without his family and friends!

Wednesday, July 7, 2010

Another Good Report

Dad had a quick check-up at the hospital today. All went well. He had some blood work done, an echo, a breathing treatment and a doctor visit. He got good reports all around. Next visit is in two weeks. Keep praying for good results!

Friday, July 2, 2010

Doing Well

Sorry for my lack of updates these days. Things have been crazy in my household and I haven't had many free moments to give an update. The great news is things are pretty uneventful with Dad at the moment. His last biopsy and doctor visit ended with good lab results and he is now down to once a month for his biopsies. Dad is still struggling with the weakness and adjusting to the massive quantities of medication, but he is finally beginning to feel normal again. He is driving and going places on his own, making plans for camping trips and has even come to Bryan for several visits. We are so very thankful for these normal days and weeks where Dad can take time to heal and we get to spend time doing the one thing we love most...being a family.

Tuesday, June 15, 2010

Lab Results

Dad went yesterday to have some lab work done. The docs wanted to make sure everything was going smoothly after they changed up his medications last week. I am happy to report that his prograf (anti-rejection) levels are good. This is wonderful news! Dad goes for his next doctor visit on Wednesday of next week.

Thursday, June 10, 2010

Pure Happiness

This is what Mimi and Papa live for!

Good News

Dad just got his biopsy results back. Good news! It was a 1! This is such a relief. He is also lowering the dose of his anti-rejection medication, so hopefully that will help him start feeling better very soon. Overall, things are going well. Let's hope it continues!

Sunday, June 6, 2010

A Success

The weekend was a success. Thank you God! Danielle's graduation and party was terrific. Everyone had a wonderful time. To top that, Dad also had a great weekend away from home. He still has a long way to go before he is at 100%. However, each day he gets a little better. Just a week ago, there would have been no way he could have made this trip to Bryan / College Station. So, today we thank God for the small steps.

Friday, June 4, 2010

First Road Trip

Today was a really big day for Dad. It was his first trip away from home since he got his new heart (with the exception of his regular visits to the doctor). This morning he came to Bryan/College Station with Kelly and Taylor. I am very happy to report that the trip went smoothly and the day was a quiet one with no major events. I think, more than anything, Dad is enjoying the change of scenery for the first time since February 14.

Tomorrow Danielle graduates from high school. She will be heading off to college very soon and we are all so very proud of her. Dad is so pleased he will get to be here for this special occasion. This family has so much to celebrate. This will be the first of many occasions Dad will be a part of.

Finally, a funny story. The other night Mom, Dad and Taylor went out to dinner. As you all know, Dad has been having dizzy spells that make it somewhat difficult for him to get around. He happen to be having one of these moments as they were leaving the restaurant. A lady happened to see him stumbling around and looked at him with concern. Mom explained that he had just had a heart transplant. Before mom could say anything more, the lady exclaimed "TODAY???" I had no idea that heart transplants were done on an outpatient basis. In for a new heart in the morning and out for Mexican food that evening! I don't think so. Some people.

Friday, May 28, 2010

Never a Dull Moment

We knew going in to this that some days would be better than others. We knew some weeks would be tough. Well, this was one of those week for Dad.

While he was in the hospital last week, they really increased the doses on some of his medications to treat the rejection. It seems that these increases have wreaked some havoc on Dad's body. He has lost most of his strength and has regular dizzy spells.

On Thursday he went in for his regular appointment (labs, biopsy and doctor visit). The really good news is that his biopsy came back as a 1. However, the not so good news is that Dad felt he needed some extra attention at his doctor visit, so he fainted (they called it a syncopal event) in the middle of the waiting room! I guess we have to give it to Dad, because he picked a good place to do it! So, needless to say, Dad was admitted to the hospital for observation.

Between yesterday and today, he has had every test in the book. Labs came back normal except for his magnesium levels, so they gave him an IV booster. His heart pressure and functions look fantastic, according to the docs. Lungs and labs look good too. So, if Dad can get his strength back (they have adjusted a few of the meds to hopefully help with this), we will be looking good. Dad believes it is a combination of medications causing the fainting spells, so they really listened to what he had to say and said OK, let's try it. Now we pray Dad gets right back on his road to recovery.

It is easy for Dad to get frustrated with all of this. He has been through so much these last few months. I can only imagine how much he just wants to feel normal again. However, we must remember that it has been less than two months since he had his chest opened up and his heart removed. When you say it like that, everything else seems like a cake walk.

Thanks again for all of the continued support. Keep Mike in your prayers. We need him to get stronger and feeling better. Also, please keep Mom in your thoughts too. May she continue to find her strength to give Dad the support he needs. One last note. I have some pretty amazing parents. They show me every day what the meaning of family really is.

Sunday, May 16, 2010

Quick Trip

When we were told what would happen if Dad went into rejection, we were warned he would be in the hospital at least one week for treatment. Well, in Dad's usual fashion, he was out in three days. They let him go home today. After just three days on the iv meds, Dr. Torre said Dad looked great and was ready to get out of the hospital. He will still be on some higher med doses than he had been before this episode, but at least he doesn't have to stay in the hospital. He will go back on Thursday for another biopsy just to make sure everything looks good. Overall, he is looking and feeling great!

Friday, May 14, 2010

Back to the Hospital

Dad got his biopsy results back today. Unfortunately, it was a 2. This means he is in the early stages of rejection. This also means he is on his way back to the hospital for at least a week of treatment. Although this is a little scary, it is to be expected during this process. He is at the best place in the world for this and his doctors know how to treat this. So, for now I ask for your prayers. I will post more once he is admitted and we hear more from the doctors.

Wednesday, May 12, 2010

Home Alone

This week was Dad's first week at home without help. It has been 5 weeks since his heart transplant. So far, he is doing great. He still struggles every day with his strength, but each day he gets a little better. Sometimes you almost forget that he had a life altering surgery just a few weeks ago. It really is amazing.

Dad is now going for his appointments every other week. Tomorrow he will have his blood work done, his biopsy and his check-up. I will have more to post tomorrow or Friday after we get the results. Please pray that Dad continues to get favorable results on his biopsies!

Monday, May 10, 2010

Happy Mother's Day, Mom

Yes, I know this blog is about Dad's heart transplant journey. However, just for today, this is about her. The world should know what a wonderful woman Kelly and I have as a mother and what a beautiful and loving wife my dad has by his side. For our entire lives she has supported us and taken care of us. She has shown my family how to love and to live with all of your heart. She has been there for Dad through his wild adventures and through his illness. Without her, we would all be lost. She has been a rock these last few months. Most days I am in awe of how she puts everything she has into the day and then gets up and does it all over again. She is a magnificent.

Mom, Happy Mother's Day from your family. We love you!

Sunday, May 2, 2010

Return to Normal

Each day brings Dad and his family closer to having a normal life together. After years of wondering when Dad would have his next episode and after months of sitting in the hospital waiting for a chance to finally move past his disease, we are finally moving forward. We are finally getting to exhale.

The days don't bring a lot to report on the medical front. Dad had one doctor visit since my last post. On Thursday he had blood work done and a biopsy. His blood work looked perfect and he scored another 1 on his biopsy. Everything is looking great! This week will be the first week Mike has no appointments! He is really looking forward to a week with no hospitals, no needles and no waiting rooms. Thank God for the little things.

On Friday, in Victor's words, Papa took his new heart out for the first time. Dad has been on a few outings here and there since he has been home from the hospital. However, on Friday we all went out for the first time as a family. We did one of our favorite things. Eat Mexican food. It was nice. Really nice.

What is more fun to post about these days is how Dad is getting to spend time with his grandkids. How nice it is to see Mimi and and Papa together again with the munchkins. This weekend Abby and Victor were in and out of the container, grabbing hugs and kisses from Mimi and Papa and raiding the snack bucket like old times. Taylor stops in to say hello each day when he gets home from school. Danielle is back to giving her Papa a hard time. Ok, maybe that goes both ways. Anyway, it is a good sound to hear the laughter and playing surrounding my mom and dad. This is what Dad fought for. This return to normal is what makes everything Dad went though all worth it.

Friday, April 23, 2010

Road to Recovery

So many times this week I have thought about posting an update, but time just slips by. Dad is doing better and better each day. He gets frustrated that he isn't up and moving around more, but we just remind him that not only is he recovering from a heart transplant, but two solid months of being in a hospital bed. Time is all he needs. Before he knows it he will be running around with the grandkids and giving Mimi a run for her money.

On Monday this week Mom stayed with Dad and took him for his blood work. All the results looked good. Tuesday and Wednesday Kelly stayed home with him and he spent time resting and trying to regain some strength. Yesterday and today were my days with Dad. I must say, I really loved spending the last two days with Mom and Dad. I had a wonderful time caring for Dad and visiting with the both of them in the evening.

Thursday is the hardest day of the week for Dad. Between the blood work, the heart biopsy and the doctor visit, he is worn out by the end of the day. I have to admit, I was pretty worn out myself! Anyway, this go around his echo looked good and he got another good score on his heart biopsy (1). All good news. The doctors seemed very pleased with his progress. The only issue that came up at this visit was a virus that appears to be activating in Dad. It is called CMV. They are putting him on a 6 month treatment for this and will evaluate him each week as needed. Apparently this virus is fairly common for transplant recipients.

In other good news, after Thursday they took him off two of his medications, bringing his grand total down to 15 medications he takes one to three times daily. Mimi is doing a great job of keeping his pharmacy in order.
The doctors also took time to admire their handy work on Dad. They made mention of how good his incision looks. It really does look good. It is not at all what I imagined it would look like after a heart transplant.
Today Dad and I spent a quiet day at home, recovering from yesterday's hospital visit. He really is looking terrific 3 weeks out from his transplant. Keep up the good work Dad!

Monday, April 19, 2010

Weekend Recap

This last weekend was Dad's first weekend out of the hospital. I am happy to report that there is not much to report. It was a quiet weekend at home for him and Mom. They continued to catch up on rest and try and build back up Dad's strength. He is taking it one day at a time and feels better every day.

Friday, April 16, 2010

Friday (4/16) Update

Yesterday Mike had his weekly check-up at the doctor. However, it isn't' really just a check-up, but rather an all day affair. He got there at 6:30 a.m. for blood work, then went to the the cath lab for a heart biopsy, then went to see the doctor. He left at 5:30 a.m. yesterday morning and didn't get home until 3:30 p.m. That is a long day for a healthy person, let alone someone that got a new heart two weeks ago. He scored a 1 on his biopsy (which is good) and everything else looked great. Dad is well on the road to recovery.

Tuesday, April 13, 2010

April is Donate Life Month

April is National Donate Life Month. Ironically, Dad got his heart in April. National Donate Life Month was established in 2003. Every day in April, people across the U.S. make a special effort to celebrate the tremendous generosity of those who have saved lives by becoming organ, tissue, marrow, and blood donors and to encourage more Americans to follow their fine example.

More than 98,000 people are in need of an organ for transplant. Each day, about 77 people get the organ transplant that gives them a second chance, but 17 to 19 others die because they did not receive an organ transplant. Save a life and become a donor today!

http://organdonor.gov/get_involved/donatelifemonth.htm

Home Is Where the Heart Is

Today Dad spent his first full day at home. 63 days after being admitted to the hospital, he is home safe and sound with a brand new heart. God has truly blessed him and this family. Today, thankfully, was uneventful. Mom and Dad spent most of their day side by side in their recliners, listening to music and catching up on some much needed rest. Slowly, life will begin to return to normal. However, make no mistake, this adventure has changed all of our lives forever. We won't waste any time living life to the fullest and making plans that we never thought would be possible. Life is good.

Sunday, April 11, 2010

Almost Home

Sorry for taking so long to post an update. It has been a very busy few days. I have lots to report! I will start with the thing that everyone is most interested in and that is how Mike is doing.

Transplant Update

The end of last week was full of some uncertainties. Dad was having some type of reaction where his face would turn red and he would get very hot. We never really figured out what was causing it, although Dad's best guess is anxiety. That issue has resolved itself and hasn't happened since Thursday.

On Thursday Dad had a biopsy of his heart. This is done to check for rejection. You get a score from 0 to 3. O means no activity is detected and 3 is fairly serious rejection. A 2 or a 3 will automatically mean a 1 week week stay in the hospital to treat the rejection. Dad will get a biopsy at decreasing frequencies throughout this first year. After the first year the biopsies are done. This go around he scored a 1. We were told that this is a good score and in some ways is more desirable than a 0. It means that his body has the ability to fight some infection but is not attacking the heart. This test result was very good news.

Mike was also experiencing a low hemoglobin count. On Wednesday it was 7.4. The doctors debated on how to treat this but in the end decided to give him a transfusion. He got the transfusion later on Thursday and by Friday his counts were already up.

Finally, the issue that seems to have extended his hospital stay a few days was his very low blood pressure. On Thursday it was, at times, undetectable. Readings like 75/45 were pretty regular. The doctors really wanted to monitor this and did adjust some of his medications to help bring it up. As of yesterday his blood pressure had gone up significantly and as of right now, this issue has also resolved itself.

High blood sugar is a natural side affect of a transplant. It takes the pancreas some time to adjust to all of the medications you have to take after a transplant. Dad was on an insulin drip and then was down to a few insulin shots throughout the day. The doctors feel confident that Dad will not develop diabetes as a result of his transplant. In fact, Dad is not even taking insulin shots with every meal and they are simply monitoring his blood sugar. More good news.

On the medical front, that is about all of the updates I have. As you can see, it is all good news. As of right now, Dad is scheduled to go home tomorrow.

Classes

On Friday Mom, Kelly, Janice and myself attended a training class with the transplant coordinator. It was to basically teach is how to care for Dad when he goes home. It was very interesting. We learned that Dad will have a fairly normal life after he has been home for 30 days. We all have to use common sense and a few extra precautions to be around him, but nothing unreasonable.

On Saturday Kelly and Mom attended a class on Dad's medications. Right now he takes about 22 pills a day, so it is a lot to keep up with. The good news is we have lots of charts and pictures to keep it all straight!

Cooking

Once again, Janice came to town to do some cooking for Dad. It is a good sign that he has his appetite back! Yesterday he got spaghetti and Mexican casserole with beans and rice. It was his first home cooked meal since he got his new heart.

House

When we all found out that Dad would be coming home Monday, everyone put it in high gear to get things ready for his home coming. Randy and Janice spent a lot of last week here so Randy could do work on the inside of the container. It looks fabulous. Steve and Danny helped out too. On Saturday the boys cleaned up all of their work stuff and then Marlene, Melissa and Monette moved in to begin the cleaning. They disinfected everything from the walls and ceiling to the bathroom, kitchen and windows. The place was sparkling when they left. It is now all cleaned up and ready for Dad to come home tomorrow.

Thank You

I know that was a lot of updates. A lot happened in the last 4 days. As you can see, none of this would have been possible without the awesome support of family and friends. The family has really pulled together to help cook, clean, work and care for Dad. This has been a life saver. Friends have supported us is so many tremendous ways. My City of Bryan work family and Mom and Kelly's Texas Children's' Hospital work family has been so understanding and has supported us in ways we couldn't have imagined. Everyone who has been a part of this experience has changed our lives forever. I speak for the entire Nall family when I say thank you, thank you, thank you.

Wednesday, April 7, 2010

Wedensday (4/7) Update

These last 48 hours have been crazy. Yesterday Dad got his drain tubes removed and the picc line in his neck taken out. It was a long and exhausting day for him. After a long wait he was finally moved out of ICU and on to the transplant floor. Last night I went to Houston and stayed with Dad for his first night on his own. Mom, Kelly, Janice and I have been taking turns sitting with him day and night. After almost 50 days of being monitored non-stop and hooked up to all kinds alarms, it was somewhat hard for Dad to get used to being without all of that. It may sound weird, but those alarms and 24 hour surveillance in the ICU provide a certain level of comfort that disappears when you move into a room with no monitors or alarms. It will take Mike some time to learn to trust his new heart and the job it is doing. Until then, some anxiety about what is going on is to be expected.

Today was a rough day. Early in the morning Dad became very weak and his blood pressure dropped extremely low. Also, his hemoglobin level was low. They made some adjustments to his meds and scheduled a heart biopsy for tomorrow to check for rejection. Later in the morning Dad had some type of reaction to something (still yet to be determined). All of the issues of the morning initiated a call that brought about 15 doctors to Dad's bedside. It was pretty impressive actually. Anyway, they continued to use medicine to treat the problems of the day and the reaction subsided and his blood pressure began to come up. Later on in the afternoon they did an echo of his heart. The results were good. It showed an ejection fraction of 70 (with his old heart is was less than 30) and confirmed that there was not any fluids around his heart. So, after an extremely long day for everyone, Dad is now resting. Mom will be staying with him tonight as he still needs lots of assistance. Tomorrow we hope for good results on his biopsy and the possibility of going home early next week.

Monday, April 5, 2010

Monday (4/5) Update

Today was a rough day for Dad. He is getting very little sleep and the deprivation is starting to take its toll. There are so many alarms and people and monitors that it makes it impossible to get some peace. After a heart transplant he obviously needs to have the 24 hour non-stop care that icu offers, but it sure would be nice if he could rest. We hope and pray that tomorrow might bring a private room on the transplant floor.

The good news of the day is that he had is intra aortic pump removed. He is doing very well without it. They also started him on some new steroids and that threw his blood sugar off again. They are working now to get that under control. Tomorrow will bring the removal of his drain tubes.

Some bumps in the road are to be expected during this experience. Dad still looks good and seems to be making good progress. We are tackeling one issue at a time and taking advantage of every moment we get to be with Dad to help him through this.

Sunday, April 4, 2010

Hey Good Lookin

Can you believe this guy had a heart transplant on Friday? Doesn't he look great? Overall Dad is doing good. He is tired and gets very little sleep in his pod with five other neighbors. Hopefully tomorrow he will move out of the cardiovascual intensive care unit and go to the transplant floor into a private room.

Tomorrow he will get his balloon pumped removed. They kept it in to provide his new heart with some extra assistance. It seems Dad is doing ok without it so they are going to take it out. He will also get his drain tubes removed. By the end of the day he should be left with only iv's and a few heart monitors. They took the defibrillator and pace maker out during the transplant.

Post surgery Dad's blood sugar remained a bit too high. They put him on an insulin drip and that lowered it significantly. By the time I left today his insulin dose had been cut in half since Friday. HTat is good news. Over the next few days he will also begin the slow process of getting off the medications that help his heart muscles squeeze. It will be a week full of big changes for Mike.

Dad swears he will be out of the hospital by the end of this coming weekend. He has determination like I have never seen. He is ready to start living. Nothing is going to stand in his way.

Friday, April 2, 2010

A New Day

I have good news to report! Today has been a long but good day. Dad's surgery went excellent and was completed in 2.5 hours. That is really quick. The surgeon said he did fabulous and everything went as planned. He was back in ICU around noon. A few hours ago they removed the ventilator tube and started to wake him. Mike is being an excellent patient and is remaining calm. Over the last few hours he has become more alert and has even said a few words. He knows he has a new heart and that he did well during surgery. The next step is to move him to the transplant floor. That could happen tomorrow or in days from now. It just depends on how Dad continues to do.

Thank you all for your thoughts and prayers. We could truly feel them envelope us today as we waited for the news. I ask that you continue to pray for Dad's speedy recovery and that you continue to ask God to watch over the family that is grieving for the loss of their loved one. Yesterday that family made a very difficult decision. They chose to give several individuals a chance at a life. Maybe one day we will be able to look the family in the eye and let them know all that they have done for this family. We are blessed.

This is a picture I took as they wheeled Dad to the operating room. His walk to the operating room felt somewhat like a Mardi Gras parade (minus the beads and boobs). He has an entourage of people with him and his family waving and cheering him on, as well as many onlookers. It was a beautiful site.

You did good Dad. We are so proud of you.

Houston, We Have a Heart

Today is the day we have been waiting for. Today God has blessed Dad with an unbelievable gift. Today Mike will get a new heart.

We got the call around 12:30 a.m. Dad was emotional and excited. They brought him back to the operating room around 6:00 a.m. and the transplant is now underway. It should last around five hours.

Please pray for Dad and this family. Please pray for the doctors and nurses. Please pray for the family that lost a loved one yesterday.

Thursday, April 1, 2010

It's the Little Things

Dad got an unexpected but very pleasant surprise this week. He got to take a shower! I am not sure what he did to sweet talk his surgeon into letting him take one, but I am certain it was the best shower of his life! It had been 41 days of make shift baths while hooked up to monitors. Apparently it is almost unheard of for someone on an intra aortic pump to get to do this. Mike is hooked to more than 20 leads, 3 monitors and his machine. His heart is monitored on three different floors and getting unhooked from everything (except his pump of course) is a major ordeal. Anyway, I am sure this won't happen again any time soon. None the less, he enjoyed it while it lasted. Now, you can thank me later, but I do not have any photos to document this occassion.

Tuesday, March 30, 2010

Some Days Are Better Than Others

Yesterday Dad had a rough day. R2D2 started acting up again. They went in and made some adjustments to it. Now we keep our fingers crossed that those adjustments did the trick. He also had a rough night on Sunday. He was up several times and got very little sleep. So, today we pray Dad has a better day and that R2D2 starts behaving himself. For my new readers, R2D2 is what Dad named the big machine that pumps his heart. When it is not working properly, if Dad moves around it beeps. I am sure you could see how annoying that might get.

To end on a happy note, I thought I would include some pictures of the grandkids.




Sunday, March 28, 2010

Are We Having Fun Yet?

Another weekend in the hospital has come and gone. Every weekend we all tell ourselves that this is going to be the weekend. But, as you can see, this was not the weekend. It was, however, full of family and food. Would we have it any other way?

Actually, I should back up a bit and tell you what a normal week is like for Dad. During the week Dad gets daily morning visits from my sister Kelly. Her and Dad enjoy coffee and breakfast together before Kelly begins her day at work and Dad begins his day just hanging out. They have both begun to really look forward to that time together. I must say I am a little jealous of that time. Then around 2 Mom goes for her daily visit and stays until 4. I know Mom and Dad both wish she could stay longer but this schedule works out good because it keeps Mom and Kelly in somewhat of a normal routine. Then 1 or 2 nights a week my Aunt Marlene takes Dad dinner and they enjoy their quiet evening over a delicious meal. To top that off, my Grandma Ann stops by occasionally after her visits to the hospital. This is all in between his daily exercise and visiting with his neighbors. So, as you can see, the week is sometimes just as busy as the weekend.

So, back to this weekend. Saturday afternoon Danny, Steve and Randy spent the day working on the shipping container (Mom and Dad's somewhat unconventional but very cool living quarters). They are putting up beautiful wood walls in preparation of when Dad gets to come home. They worked hard and the place looked great when everyone left today. Victor spent the day napping with Aunt Kelly while Taylor and Mimi helped the boys work. Abby and I got to spend the evening with Papa. It was a terrific visit. We had Italian for dinner, played cards and snuggled. Janice stayed back in Bryan and baked and cooked tons of yummy stuff to share with everyone on Sunday.

On Sunday, Randy and Steve did some more work on the container while the Guindi Family went and visited with Papa again. Victor is still very skeptical of all of the machines and is sometimes scared to get near Papa. However, this time he seemed to be getting used to everything and even joined Abby and Papa for a few rounds of thumb war while laying in Papa's bed. That is progress. We then all met back at Kelly's for Danielle's 18th birthday party. The entire family was able to make it and it was nice seeing everyone. Finally, Janice and Randy took Mike dinner and some sweets. They even fixed the nurses up with some goodies too. Taylor is missing his Papa a lot so he joined Janice and Randy for their visit.

It is amazing how experiences like these can change your perspective on things. This has made the entire family realize how truly lucky we are to have such a strong and wonderful family. We have had experiences that would never have been possible without this little detour in our lives. Dad is on an adventure and we are all lucky enough to be on it with him. Thanks Dad for letting us be a part of this. We love you.

Tuesday, March 23, 2010

37 Days

Today marks Mike's 37th day in the hospital. I have no big news to report, but I do have a few small updates. Dad is in great spirits. Even though he is pushing almost 40 consecutive days in the hospital, he is staying positive and optimistic.

Although I am happy for Dad, it is somewhat frustrating to give this part of my report. Dad is getting fed home cooked meals and gets goodies to eat all week long, but as of yesterday he has not gained even one pound. What! Most of the rest of us would be elated to be able to eat all day and lay and bed and still maintain our figure. Some things just aren't fair. None the less, way to go Dad on this accomplishment.

Dad also has been getting out more these last few days. Things have been slow and has been going for more walks these last few days. He even got a rare treat yesterday and got to meet some of his neighbors. The gentleman next door is waiting on his second heart. Dad got to visit with him and his guests. Even better, apparently he had some musical talent visiting yesterday and Dad joined him in listening to them play and sing some gospel music. I think it was just what he needed. It was uplifting and beautiful.

Papa's grandkids are beginning to struggle a bit with Papa being in the hospital. Taylor was not too happy when he found out the lady on one side of him got a heart after waiting only three days. He couldn't figure out why the doctor's wouldn't give Papa one when he had been waiting longer. If it only worked that way. Abby has also been asking lots of questions. She hasn't figured out why her Papa looks "normal" but can't go home. It is tough on the little ones. But we are grateful they are able to go to the hospital and spend time with their Papa. The glass is defiantly half full.

So, all in all, things are going well. It would be easy to get frustrated and impatient, but when we remember the awesome gift my Dad is being given...what an unbelievable opportunity he is being blessed with...it is easy to take a deep breath and trust God's perfect timing.

Wednesday, March 17, 2010

New Balloon

Yesterday afternoon Dad got a new intra aortic balloon put in. His other one had moved slightly and was causing alarms to go off regularly. The procedure went off without a hitch. He also got a new PICC line installed. Hopefully now he can get some much needed rest.

Sunday, March 14, 2010

One Month

Today Dad has been in the hospital for one month. Time flies when you are having fun! It may seem odd to say, but these last four weeks have gone by faster than we all anticipated. Even though the circumstances aren't ideal, we have all made the most of the situation. We have taken this opportunity to cherish many special moments together. So, even though we have spent a lot of time in the hospital, it hasn't been all bad as we pass the time.

Tonight or tomorrow Dad will go back in for another procedure. His intra-aortic balloon has moved and it needs to be put back in the right spot. This should be a fairly minor procedure and will hopefully be the last one before his big day!

Sunday, March 7, 2010

21 Days

Today marks Dad's 21st day in the hospital. I'm not sure how he doesn't go crazy sitting all day. Waiting. He doesn't like tv and doesn't do much reading. I know if I were in his shoes I would already have blown through a dozen or two novels. However, Mike is more content occasionally browsing the internet and reading a magazine here or there. The boredom is bad on some days and on others the day flies by. Please join me in praying for the light at the end of the tunnel.

Dad had lots of visitors this weekend. On Friday night mom and I spent the evening with him. We had greek food for dinner and enjoyed a nice, quiet evening. On Saturday mom and I brought Taylor for a visit. Marlene and Leslie dropped by and Danny, Abby and Victor also showed up to say hello. Victor did much better this time will all of the machines. The gummy bears Papa gave him helped a little. Finally, today Janice and Randy took Dad a home cooked meal and spent the afternoon with him. All in all it was a nice weekend in the Nall Ward of the hospital.

Tuesday, March 2, 2010

Life Goes On

Some days I struggle to find something to write. Some days it is just easier to let the time pass without a comment. Today is not that day. Today I feel compelled to write about something very specific. Today I want to acknowledge the incredibly strong network we have called family. Today I want to acknowledge all of the people sending love and prayers to Mike. Everyone that surrounds my Dad with love and compassion is cherished in a way they can not imagine. The visits, the food, the phone calls, the emails, the hugs and yes, the occasional tear, will never be forgotten.

It is because of the people in my Dad's life that he marches on. There is no pity at this party. There are no regrets. Today there is only room for hope and optimism. For smiles. Today, life goes on.

Monday, March 1, 2010

Progress Report

Well, today I do not have much new news to report. Dad continues to do well on his machines and is keeping himself occupied at The Methodist Inn. This weekend he had many visitors and lots of home cooked meals. The circumstances could be better, but he is enjoying the grub.

Last week and weekend also came with it lots of sick family members, including myself. Thank goodness for the urgent care clinic up the street. Anyway, we are hoping that this week brings healthiness for the family and maybe, just maybe, a new heart. A girl can dream.

Thursday, February 25, 2010

One Week and Counting

Today will complete Mike's 7th day at the top of the transplant list. Some days have been better than others. However, Dad remains in good spirits and we all pray that the wait won't be much longer. Everyone is ready to move on. Yesterday he got a chance to spend the afternoon with Kelly and Taylor. They brought him mexican food and he inhaled it. There are some things in life that always make the day better. In this family it is mexican food. Taylor spent the afternoon curled in the bed with Papa, playing games and watching the Olympics. It is those moments of normalcy that make the days go by faster. From a health standpoint, there isn't much new to report. Dad's machines are doing their job. He has some pain in his shoulder and chest and the nurses are treating that on an as needed basis. Things are moving along as they should.

Wednesday, February 24, 2010

Snow

Ok, you may be wondering what this picture has to do with my dad and his heart. This is a picture of our snowman that we made last night after a beautiful afternoon of snow. It really doesn't have anything to do with Dad, except for the fact that Papa has been talking about taking his grandkids to see snow for the past two years. We even had a big family trip planned in December, but we got the news he needed a transplant just weeks before we were supposed to go. We made the decision to cancel the trip all together and plan it for a day that Dad would be healthy enough to join us. So, this picture serves as a reminder of all of the wonderful things we will get to do with Dad once he is given his new lease on life. Dad, we will all be standing at the bottom of that ski slope, cheering you on when you reach the bottom. I can hardly wait.

Monday, February 22, 2010

Not as Bad as it Sounds

I know many of you have not had a chance to see Mike at the hospital. This post is to show you that although the situation is not ideal and Dad is on "life support" for his heart, he is still doing well. He is in remarkably good spirits and if he covers up all of the wires and machines, you probably wouldn't know that anything was different. That is always how Dad has been. Even at his worst, he keeps a smile on his face and he never lets it show that he is sick. However, if you ask Abby she will tell you, "Papa is not sick sick. He just needs a new heart!"

Sunday, February 21, 2010

Settling In

Yesterday Dad was moved to his private room. It is on the 11th floor in the Fondren Heart Failure Unit at The Methodist Hospital. The unit is very quiet and Dad is being treated very well. The food is great and the company even better. Yesterday he had lots of visitors. Abby and I got to spend the day with him. The unit where he is at is very flexible about visitors and they even let the grandkids come to see him. Abby reacted well to seeing Papa in the hospital. She was a bit mesmerized by all of the wires, but it didn't phase her for long. We enjoyed our afternoon together.

Today Taylor and Victor will have their first visits with Papa in the hospital. Janice and Randy are also coming in town, along with some of their homemade meatloaf and banana pudding for Dad. I hope he doesn't get used to all of this spoiling!

R2D2

It has been an eventful week. Let me try to type a quick update on everything that has happened. On Monday Dad went in to the hospital for iv treatment of his pulmonary hypertension. It appeared to be working great. Good enough to send him home on Wednesday. Around lunchtime on Wednesday Mom and Dad left the hospital. They stopped to grab a bite to eat before heading home. To make a long story short, on the way home Dad's defibrillator went off. Mom rushed him to the ER (thank goodness they were still close to the hospital) and he was admitted. Dad was not reacting well to the iv meds and that was causing severe arrhythmias. The meds were stopped.

On Thursday Dad had a procedure to install an intra aortic balloon pump. This will regulate the heart pressure and basically perform the functions of his heart until he receives his transplant. As Dad was being wheeled out of surgery he said, "Hey, look at my new heart. It is R2D2."

With this machine Dad will not be leaving the hospital until he gets a new heart. He won't be very mobile. There are lots of wires and monitors that make moving around somewhat difficult. Dad is taking this very well. He is in good spirits and willing to do whatever it takes to get his "new motor."

Monday, February 15, 2010

Pressure Update

Today Dad was admitted for iv treatment of his pulmonary hypertension. The heart cath showed that his pressures were still very high so then began iv treatment immediately after the procedure. The meds have to run for 48 hours, but it appears they are making a difference. Dr. Torre will be in first thing in the morning to decide what to do next. If they do let him go home, he now has a PICC line in his arm and will be able to administer the medications via the catheter. However, that decision will be made tomorrow. For now, Dad is resting comfortably and in very good hands.

Calm Before the Storm

I can't count the number of times we have sat it the waiting room waiting for the doctor to come give us the results of Dad's latest heart cath. Each time he was wheeled away my stomach turned to knots and the anticipation of the next blow would build. The news was never good, but for so many years, that has been the reality. We simply prayed that God would carry Dad just a few more years.

Eight years ago Dr. Torre came into our life. That is when the discussion of a heart transplant began. Each time Dr. Torre would walk out of the operating room we would wait to hear the news and decide what to do next. For most of those eight years, a heart transplant was far in the back of every one's mind. Dr. Torre has provided my father with exceptional care. He is a terrific physician. None the less, we always knew that there was only so far the medical profession could go with my Dad's weakening heart. One day my Dad would need the miracle of a new heart.

So here we are today. Waiting. Praying. We spend our days as a family reminiscing about the time we have had together and hopeful about what is yet to come. But as Dad was wheeled away this morning for his heart cath, there was an unusual calmness. No knots. No fear of what news we would hear next. It was an odd but good feeling. We have surrendered ourselves to the process. We know what's next. It may be scary, but it is the new reality. It may be stormy for a while, but there is sure to be a rainbow when all is said and done!

Sunday, February 14, 2010

Boots and Bow Ties

Last night Janice and Randy treated the Nall/Bursmith/Guindi family to a wonderful fundraising dinner and dance. We all got to spend a kid-free evening together, enjoying each others company...all for a good cause. The event was to raise funds for Scotty's House; a local organization that provides support to abused children. We dined on a delicious steak dinner and told many good stories. As always, we were the loudest bunch in the room. Laughter: God's medicine for the soul.

Tomorrow Dad will be admitted to the hospital. He will go in for blood work, a heart cath and then hopefully begin his iv meds for pulmonary hypertension. If he begins the iv meds we can expect his stay to last at least several days.

Friday, February 5, 2010

Paging Mr. Nall

Dad got a special delivery in the mail a few days ago. His pager has arrived. I guess that makes all of this transplant stuff official. It could be days, weeks, or months...but his life will forever change when that small plastic object starts vibrating in his pocket.

Sunday, January 24, 2010

Sick

Well, Mike has come down with a cough and cold. Right now it looks like he will not be admitted tomorrow for his pulmonary hypertension treatment. The good news is all of his tests and procedures from last week came back clear and as soon as he has this treatment he will be all clear for surgery.

Sunday, January 17, 2010

Update on Mike's Race to a New Heart

Mike has almost completed all of the necessary pre-transplant tests and procedures. He goes next week for two minor consultations and procedures. Then the next week (Monday, January 25th) he will be admitted to the hospital for a round of iv treatment for pulmonary hypertension. It it dangerous to transplant a heart in a patient that has pulmonary hypertension, so they must treat this issue first before he gets his new heart. It should take just a few days and he will hopefully be out of the hospital around Wednesday of the same week. If all goes well during that trip to the hospital then the waiting game...and the praying...officially begins.

Infection and Rejection Class

Here are a few more notes from another mandatory class on Infection and Rejection for transplant recipients and their family.
  • the transplanted organ is viewed by your body as an invading protein, just like a virus, and comes under attack by antibodies - this process is known as rejection
  • rejection can be mild moderate or severe and is a very normal response for the body
  • rejection does not mean the transplant has failed
  • immunosuppresive drugs are given so the immune system is suppressed to allow the heart to remain
  • this action exposes the body to a greater risk of infection
  • warning signs of rejection can be unusual fatigue, shortness of breath, sudden weight gain, and fever
  • there are treatments for rejection and at least one transplant rejection episode is anticipated during the early transplant recovery period
  • infection is actually a greater concern to the patient than rejection
  • Risk for infection will be greatest in the beginning and decrease throughout Mike's life
  • HAND WASHING is absolutely the most important preventive measure
  • Masks and gloves must be worn by all care takes for at least one month after discharge
  • Mike will be required to wear a mask outside of his hospital room and should wear one for an extended period of time post discharge
  • crowds will be a big no-no for at least 6 months post discharge
  • no one should ever come in contact with Mike if they have been sick or think they are getting sick - there is no such thing of a minor infection for Mike after he gets his new heart
  • every infection can be serious
  • no flowers, stuffed animals, plants, fruit or food can be delivered to Mike
  • from here on out Mike's food must be cooked to specific temperatures and prepared with certain precautionary measures - if you plan to cook for him, these rules MUST be followed (will share more when we get closer to that time)

Your Transplant and After Class

Mom, Dad, Kelly and I went to the Your Transplant and After class. I thought I would give everyone a quick summary of what we learned.
  • only immediate care givers should accompany Mike to the hospital when he gets the call
  • there is always a chance he may not get a heart even after the call - he could be called as a back-up or there could be a problem with the donor heart
  • the heart can survive outside of the donor body only 4 hours
  • Dad will not be cut open until the heart surgeon has actually visualized the donor heart and confirmed it is of good quality and match
  • after the surgery he will go to in the Intensive Care Unit (FICU - 3rd floor Fondren) for 3 to 6 days
  • when he is stable he will move to the Transplant Floor on the 4th floor of Dunn Tower
  • visitors should be kept to a minimum while Mike is in the hospital - he is highly susceptible to infection and they suggest only healthy immediate family members come in contact with him for approximately one month after surgery
  • he will be in the hospital 7 to 14 days after the surgery
  • he will require at-home 24 hour care for the first 30 days after discharge
  • he cannot travel more than 2 hours away from the hospital 3 to 6 months after surgery
  • there will be no heavy lifting for Mike the first 8 weeks and no driving for 6 to 8 weeks
  • he must avoid anyone who receives a live vaccine for 2 weeks